The NSW Citizens’ Jury on Health Data Sharing
Opportunity: The broad aim of the project was to answer this important question 'NSW Health shares health data with other organisations for research and innovation. How should this be done?'
Opportunity: The broad aim of the project was to answer this important question 'NSW Health shares health data with other organisations for research and innovation. How should this be done?'
This project created a secure, integrated health data platform that connects information from general practice and hospitals across Western Sydney, to help clinicians can gain a more complete view of patient care journeys and make better-informed decisions to improve health outcomes.
Opportunity: Over 80% of Australians see their GPs each year, making the information held in general practice the most comprehensive record of the health of all Australians. However, this information is used to a limited degree. How can we enhance public confidence in the secondary use of general practice data for research purposes?
Opportunity: Establish and deploy an integrated, interoperable and secure scalable platform which could harmonise multimodal healthcare data for data-driven research and development. The project also looked to create a use case to validate platform efficacy.