Opportunity: provide a clearer understanding of social licence in the context of synthetic health data through targeted consumer and stakeholder engagement activities designed to explore trust, transparency and social licence considerations.
Opportunity: The broad aim of the project was to answer this important question 'NSW Health shares health data with other organisations for research and innovation. How should this be done?'
Opportunity: Over 80% of Australians see their GPs each year, making the information held in general practice the most comprehensive record of the health of all Australians. However, this information is used to a limited degree. How can we enhance public confidence in the secondary use of general practice data for research purposes?
Opportunity: explore the role data collected through various systems in hospitals can play in supporting reflective practice by health professionals to improve health outcomes for patients.
Opportunity: support the Australian response to the COVID-19 pandemic by creating a way to capture a broad range of clinical and patient reported data spanning the entire patient journey, from diagnosis through management and into long term follow up.
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