GPData 2.0: Building public confidence in the secondary use of general practice data for research [extension of DHCRC-0105]

Project Participants

Health Consumers NSW Inc, Macquarie University, Population Health Research Network, University of Wollongong

Status: Ongoing

Opportunity

A two year project with the aim of developing a best practice framework to enhance public confidence in the secondary use of general practice data for research purposes.

Project Objectives

With respect to the secondary use of general practice data for research purposes:

  1. Explore the perceptions of key stakeholders including community members, GPs and policy makers regarding acceptable policies and practices
  2. Identify legal and ethical requirements
  3. Create training resources for consumers
  4. Develop a framework that is socially, ethically and legally acceptable.

Publications

Integrity, Excellence,
Teamwork and Authenticity