Ethics, legal and social implications project – general practice data

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State: Western Australia

Status: Ongoing

Opportunity

Conduct a deep investigation into the ethical and legal ramifications of using general practice data for health research purposes.

Project objective

This project will identify the legal and policy issues around accessing general practice data for research. Where’s the right balance between protecting a patient’s privacy and allowing researchers to access this valuable data pool? 

Researchers also aim to look at how the general public feels about researchers having access to their personal health data.  

The outcome of the work will be a report entitled, ‘Ethics, Legal and Social Implications of the Use of General Practice Data in Research’ which will include suggestions on law and policy reform, potential regulatory changes, and future areas of research.

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